I’m discovering that a lot of people interested in Fetal Alcohol Spectrum Disorders don’t know where to start getting education about them.

This entry will be my repository of links that give basic information that I think is vital for parents, caregivers, professionals, and clinicians to know.

It is not meant to be a source of testimonials about life with someone with FASD, though I have found a great deal of support from the private Facebook group, Parenting FASD Teens and Adults. One of the administrators of that groups keeps a blog at parentingfaskids.com.

That Facebook groups has a great list of resources under Files. You may not be able to access the list if you’re not a member, though.

It will grow as my knowledge grows.

 

Birth Defects and When They Develop in the Womb

From the Arizona State University School of Life Sciences, Center for Biology and Society.
Developmental Timeline of Alcohol-Induced Birth Defects
“There is no point during development when prenatal alcohol exposure lacks consequences.” This encyclopedic entry describes when in the gestation cycle alcohol is liable to cause what kinds of problems.

Gastrulation: When the Facial Characteristics of FAS Develop in the Embryo

Facial Features of FAS are not the only features

Avoid Insight-Based Therapy for Your FASD Loved One

Here is a blog entry that talks about one of the most important things we’ve learned about our particularly troubled daughter: that insight-based therapy is not only not helpful for kids with fetal alcohol syndrome, but it can even backfire and cause more problems than it tries to solve. Donald Craig Peterson is the author of Adopting Faith: A Father’s Unconditional Love. There’s a lot here for adoptive parents of kids with FASD and with other kinds of trauma.
Why Talk Therapy Fails

Fact Sheets That May Interest You

Here is a page of fact sheets published by the National (US) Organization on Fetal Alcohol Syndrome. It’s really a good web site! Thorough, detailed, authoritative.

Get a Diagnosis! (Get Services)

Guidelines for Diagnosing Fetal Alcohol Spectrum Disorder published by the (US) Centers for Disease Control

The CDC does NOT require that you be able to produce testimony or proof of the birth mother’s drinking in order to secure a diagnosis of FASD. Any US clinic that says you need this is not up to speed with the latest requirements. Insist on your rights! If you need a diagnosis to get services, you should be able to get one in the USA.

Overlapping Behavioral Characteristics in Children’s Mental Health Conditions

(This chart is a PDF.) FASD can produce behaviors that also exhibit in kids with ADD/ADHD; Sensory Integration Dysfunction;  Autism; Bipolar Disorder; Reactive Attachment Disorder; Depression; and Oppositional Defiant Disorder… not to mention the historical and environmental factors of  trauma and poverty. Complicating matters further is that kids may have more than one of these disorders.

FASD May Be as Common as Autism

Time Magazine reports on an article in the Journal of the American Medical Association (you have to be a member to link to the article) in February of 2018 that says that FASD may be far more common than previously thought and may be at least as common as autism.

Confabulation: Making It Up as They Go Along

Confabulation is not the same thing as lying.

FASD and Bed-Wetting

Apparently more common than in typical kids, and more commonly continuing into adulthood than in typical kids.

MOFAS article on bed-wetting

Overview of FASD in Time Magazine in 2014, including South Africa statistics

This Is Your Child’s Brain on Alcohol

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